I didn't expect to find out this way. I wasn't quite ready for confirmation yet that my youngest child also has Stickler Syndrome. The blood work had been sent off to genetics weeks prior, and even though I studied his facial features and saw right away that his tiny baby elbows were hyper-mobile (some call [...]
Month: January 2020
Henry Update: Home.
After 16 days in the hospital, Henry and I returned back home. I remained diligent on being involved in the doctor's rounds each morning which was often attended by a registrar or two (similar to what we would call a resident un the US health system), the head nurse, his assigned nurse and a consultant [...]